Back to Blogging Basics

I feel like the last post was not me at my brightest.  I’d apologize, but I feel like that would be apologizing for not always feeling happy, and that wouldn’t be fair to me.  Sometimes I’m not happy, and 98% of the time it’s because my hormones are ravaging me from the inside.  I will explain why they’ve been out of control lately, and maybe that will shed some light on my low mood in my last post.

In April, I had a chemical pregnancy.  I know, it surprised me too.  How the hell did that even happen?  Not only would that mean that I would have had to ovulate *gasp*, but my husbands sperm would have also had to make it to an egg AND penetrate it AND fertilize it.  *gasp gasp gasp*

The truly sad, yet also good, part about it is that I didn’t know it had happened until well after it happened.  I know, ridiculous right?  You see though, my cycles are somewhere around 35-42 days.  I had tested at four weeks because even though I was sure I’d never get pregnant naturally, I have always enjoyed peeing on sticks and hoping to be surprised one day.  Test at four weeks was negative, same for the test at five weeks (or so I thought… more on this later).  So when I woke up on cd 44 and tested again (hey, i had one test left!), I didn’t even check it because that same pee showed that my period had started.  What a waste of a test.  I shoved it back into the box and put it away in the pregnancy test drawer.  My husband knows I test, but for some reason I don’t like him to see the tests in the garbage.  I know, it’s weird.

After my period, which was lighter and shorter than normal, I felt very sad and I had no energy.  Usually after my period I’m ready to go everywhere, clean everything, and get it on with my husband to my hearts desire (my PCOS gives me an insatiable sex drive — only perk, honestly).  I didn’t feel like this at all though, so I talked with my friend who’s had a few miscarriages.  I was just telling her about how I felt pretty sucky, and she asked if I was positive I hadn’t just miscarried.  I was pretty sure, since the chances are like… a bazillion to one, but I was curious, so I pulled the box of tests out (still not thrown away — try not to judge me for holding on to old pee sticks), and I pulled out all three.  One was definitely negative (four weeks), but to my surprise, the other two had faint pink lines.  One was very faint, and one was actually visible.  I know what you’re going to say, evaporation lines!!  I agree, that is a thing, but you must also know that I’ve never once had an evaporation line on any test (I’ve looked days and weeks later at some of them), and these lines were pink, I hear evap lines typically aren’t.

So, there it was, right in front of my face.  Holy crap.  I had been pregnant—ish?  Was I glad I hadn’t noticed the positive the same time I started bleeding?  I mean, wasn’t it already too late?  I tested again to make sure I wasn’t still showing as being pregnant, and I wasn’t.  The doctor said if I wasn’t then it was too late.  Wow… I still can’t believe I was pregnant—ish.

So, I started birth control.  My husband and I had decided a while ago that if we did try again, we’d want to try with our two frozen embryos first.  So, I wanted to insure I didn’t have another miscarriage, and I started birth control.  It made me sick, so sick.  I had the worst headache, it took over my entire body, head to feet.  I couldn’t focus, or think, or take care of myself or my daughter, so after three days (yes, only three days) I stopped.  My period started two days later.

Then we went to the reproductive endocrinologist and set up a date to try our FET.  The hormones from the pregnancy/miscarriage made me want to be pregnant right then and there.  I would have gladly thrown myself into the stirrups and had them do the transfer right that minute if that were how it works, but sadly it doesn’t.  Sadly, you have to be on birth control for at least two-three weeks before you can start the process.  not have the transfer, but start the process.  So I tried a different birth control…  eight days later I was in bed, sobbing and sleeping… and that was it.  That was all I could do.  My in-laws had to take my daughter for two days because I couldn’t do anything but cry.  I was sure my husband hated me, that my in-laws thought I was a terrible mother, and that the world would be a much happier place if I just wasn’t in it.  I wasn’t suicidal, thankfully, I just thought that if I disappeared, people would be better off.

It has been three weeks since I stopped BC.  I just started feeling better about three days ago.  I feel like myself.  No more nasty thoughts haunting me, no more pain, no more sad. Phew…. I am relieved.  I do not know how people function when they are depressed.  I couldn’t.  I hope everyone who suffers from depression can find their way out.  It is a dark place.  So very dark.

So that’s where we are.  I can’t do the FET, because I can’t be on birth control.  Even if there is one that won’t turn me in a sob monster, or cause me horrible pain, I couldn’t work up the nerve to try right now if someone paid me to do it.  I just can’t.  I can’t go back to that dark place right now.  I am still physically and mentally exhausted from it.  So, we are just going to toss our baby hopes into the wind and see if maybe we can get lucky and have something stick this time.  I am eating as well as I can, exercising, and also getting a lot of down time and help with my daughter.  Trying to put myself into a good place so that maybe, just maybe, I can be one of those “after infertility treatments” success stories.  If not, we will try for an FET again down the road sometime.

Fingers crossed….

The Birth Control Choice Is In….

…and it’s…. condoms!  Whoa!  No one was expecting that, were they?

It was a strange decision that had a lot to do with my not wanting to take the chance of the progesterone only pill drying up my milk.  This is a thing.  Just Google it and you will be shocked by how many women have had this problem.  It’s just not worth the chance.  It may be a 1 in 1 million chance, but that is enough of a chance for me.  With breastfeeding, PCOS, DOR, the likely possibility that I have primary ovarian inefficiency which will lead to menopause within the next 2-3 years, AND condoms…. I think our chances of conceiving accidentally would be pretty low, if not non-existent.

Right now I am really terrified that I have a cyst on my left ovary.  I’ve been feeling twinges ever since giving birth, but I assumed this probably had something to do with GIVING BIRTH, but it’s been worse and worse over the past two days.  I remember them mentioning a small cyst on my ovary during one of my pregnancy ultrasounds (most likely a leftover follicle from the IVF), but geez, you’d think pregnancy hormones would have kicked that thing out of there?  Dried it up? Something…  Guess I did not get that lucky.  I just really hope I do not have to deal with a rupturing cyst.  This is like a period multiplied by 1,000.  It’s not quite on the level of epidural-less birth, but it is still pretty horrific.  I am usually hunched over the toilet throwing up, screaming, and sobbing.  Not sure how I’d breastfeed through something like that?  Let’s just send out some vibes that will kill this (likely) cyst!

 

Oh, and in happy baby fertility news… I have a friend who, after two years, 3 IUI’s, a fresh IVF, a chemical pregnancy (early miscarriage), and an FET, was FINALLY successful and is now about 12 weeks pregnant!  The FET was successful!  I am very excited for her.  It gives me hope for all of you who are out there still trying.  I know it’s hard and you want to give up, but please don’t.  I’m not saying it has to be fertility treatments, it can be adoption.  Just any way to have a child.  If you want a child, please continue fighting for one!  And if there is anything I can help you with (although I’m certainly not a professional) please let me know!  I am here to answer questions!

After Birth: Birth Control and PCOS

I’m back for a bit to update you on the recent information I’ve gathered regarding my lovely PCOS and my future birth control plans.

I have my six week checkup on Thursday (has everything healed?  Are my goodies permanently deformed??), but before I go in I decided to gather some information from my RE.  (I absolutely adore this doctor and wish I could pay him to be my doctor for everything).  I asked his opinion on what I should do for future birth control, both for my PCOS and for the future (if we choose to do an FET).  I want my body to be both healthy for now, and healthy for a possible second child.  Since I am on the cusp of menopause (already peri-menopausal) I wanted to also verify that menopause would not deter a future FET.  Turns out it won’t!  It won’t even hurt the chances of success!  Science is on the ball, guys.

So, the birth control options are an IUD, progestrin only pills (refered to as a “mini pill” by the RE), a combined pill with progesterone and estrogen (he is not 100% sure they will still do this for a breastfeeding mother, but they used to ten years ago when he did his residency), and good ol’ condoms.

Condoms are out.  Those are so not fun to deal with.

The mini pill is most likely the way my OB/GYN will have me go.  I already know a girl who was put on this from the same practice.  She said they recommended this as the only option for a breastfeeding mother.  I may not have an option.

The combined pill is what I want the most.  I am worried about remembering to take a pill at the moment, since I am quite tired most days, but it is best for me because of the estrogen.  The estrogen will help keep my not-so-fun PCOS symptoms under control.  I’m just not sure they will let me take a pill containing estrogen while breastfeeding.  We shall see!

IUD is an option, of course, but it worries me that I do not know one person who has successfully had an IUD placed and kept it longer than a couple months.  Constant pain seems to be the biggest complaint, and who wants to live with that?  Only upside?  My RE believes that it will prevent any future periods.  This is good for convenience sake, but I was quite worried about the risk factor for endometrial cancer.  For those of you with PCOS, we have a very high risk of endometrial cancer due to our lining not shedding enough.  The lining stays in and basically rots.  Awesome.  But rest assured, if you go with the IUD, the hormone that is released by the IUD keeps the endometrium from forming, which prevents the risk of the cancer.  Hoorah!

So, these are my options.  I will update and let you all know which I’m going with.  IUD, combined pill, or mini pill??

It’s True… But How?

I’m so confused right now.  I went in for my ultrasound thinking “stupid blood test making me spend $250 just to find out that everything is fine!”  Well, how wrong I was.  The blood test was right.  Somehow I’ve misplaced all my eggs.  I went from a 6.9 AMH in August (super high because of my PCOS) to 0.67 now.  How the hell does that happen?  I still have PCOS.  Do I now how have some of other super fun piece of shit disease or disorder or something?

I am so angry and upset.  I don’t understand how all the sudden, the ONE thing my body did right, can’t do it anymore.  How did this happen? HOW?! And why!?

I wish my doctor had been the one to do the ultrasound today.  This lady doctor doesn’t have a very good bedside manner.  The only thing she asked when she saw it was “have you had any pelvic surgery recently?”  I said “No” and then that was it, she didn’t have any other ideas at all.  She said “It’s good you’re doing IVF! We definitely have to have you on a high dose!”  IT DOESN’T MAKE ANY SENSE!! I had to be on the lowest dose possible (25 units of follistim) for the start of my IUI’s.  So, any explanation doctor….. Oh, nothing?  Just the words “Don’t worry, it’s going to be okay” as you walk out the door?  That made me feel even worse about it.  I knew it had to be serious for her to give me the reassuring BS as she walked out the door.  I mean, thanks, but now I know it’s worse than I thought.

This kind of takes away some of my joy to start the process.  Now I know there is a chance that I won’t make a lot of follicles, which is insanity! I am the girl who made 9 follicles on the lowest dose of meds possible.  How is this happening?  Is there something wrong with me?  I’ve been on BC since our last IUI failed in January, so I know they didn’t all ovulate out over the past nine months.  Where did they go.  I’m so confused. Someone help me!

I’m just going to have to take some advice from Florence and the Machine in their song “Shake it Out.”  I’m grateful for my husband, my family and my friends.  And I’m lucky to be able to do IVF at all.  I must remember these things, because she’s right, it IS hard to dance with a devil on your back.

I’m going to take the rest of the weekend to be ill about this though.  Hopefully I’ll be better by nursing class on Tuesday.

____________________________

“And I’m damned if I do and I’m damned if I don’t
So here’s to drinks in the dark at the end of my road
And I’m ready to suffer and I’m ready to hope
It’s a shot in the dark and right at my throat
‘Cause looking for heaven, found the devil in me
Looking for heaven, for the devil in me
Well what the hell I’m gonna let it happen to me

Shake it out, shake it out,
Shake it out, shake it out, ooh whoa
Shake it out, shake it out,
Shake it out, shake it out, ooh whoa
And it’s hard to dance with a devil on your back
So shake him off, oh whoa”

 

Soon…

I woke up this morning from a pretty crappy night of sleep.  We visited my family Sunday and Monday and had to sleep in their house.  Their house is full of cigarette smoke and the entire time we are there we feel as if we are being suffocated.  The sad part is that they have no idea how bad it is.  My mother will say “but we haven’t smoked inside in three hours!”  Oh, okay, you’re right… the smoke from the last 29 years probably isn’t just sitting in here, clinging to the walls, the carpet and your skin.  Ugh.  Lost my train of thought….

So, I woke up this morning from a crappy night of sleep and suddenly I remembered that it was Tuesday. TUESDAY people!  I was sure to be waking up on Monday, but that Labor Day break totally got me.  Sneaky holiday.  Well, okay, so it’s Tuesday… which means I only have ONE WEEK until our nursing class! Woo!  I’m hoping that means I can start our medicine for the IVF next Tuesday after the class, but I’m not 100% sure how long I have to be off of the birth control before they will let me start.  I know he mentioned that I might have a slight period between the birth control and medication, but I think he just meant that my body going straight from birth control to medication might confuse it and I will have some bleeding.  Eh?  Maybe I guess.

I’m getting really nervous.  All of the “what if this doesn’t work” thoughts are popping up all over the place.  I’ve been pretty positive up until now, but now the realization is hitting me that I may not ever get pregnant, no matter what we do.  It’s possible.  There are a ton of people out there just like me who have gone through rounds and rounds of IVF with no positive results.  What makes me think I will be one of the lucky ones?  I guess nothing.  Nothing makes me think that.  Damn this logical brain of mine.  I wonder if it’s better to expect the worst or to be completely oblivious to it?  Ah, well, I’m going to keep my happy face on and hope that all goes well!  I just wish I knew a couple PCOS ladies who have had success.  Maybe that would make me feel better?  The only other ladies I know who have done IVF with positive results have been a girl with Endometriosis and a girl with low egg stash.  Not really the same for comparisons sake.. but it will have to do!

Less than a week now! Woo!

Saline and Mock

Well, everything went great today! I was worried for nothing, which does tend to happen.

We started off with a consultation with the doctor.  He is great and I really enjoy him as a person and a doctor.  He went over the procedure again, from the meds to the transfer.  There was something I was surprised to hear though.  I have read and heard that a lot of women who go through IVF are on birth control while they do the meds.  This is the wrong way to go about it.  I mean, each clinic has their own way of doing things, so shouldn’t say it’s wrong, but my doctor pointed out that if you do that, your lining is not growing like it needs to because the birth control won’t let it plump up like it needs to.  Huh.  Wonder why other places have women stay on birth control while they do the meds?

I also learned that he is fearful that because of my PCOS and my past experience with meds for IUI (the first round I was on the lowest recommended starting dose and I produced 9 follicles), he is worried about over-stimulation.  He says there are a few ways to handle that, which will come if and when we need to worry about that, but that might mean I’ll need more monitoring visits.  $300 a pop.  Eep.

I couldn’t get into a nursing class until September 11th.  Kind of stinks because I wanted to start, like, today!  It’s okay though, that will give me time to finish getting rid of this blasted cough!  It still lingers….

The saline showed that I had no cysts on the ovaries and my uterus has nothing strange in it.  He said it looked perfect.  Nice compliment for my baby holder.  Hopefully it will want to hold a baby or two for me.

The Mock also went well.  He had a little trouble with the bend in the catheter to get it to go in nice and smooth, but that is why they do the mock, so that they have the perfect measurements, bends and catheter size for the actual transfer day.  Don’t want any hold ups with your little embryos hanging out in there!

Both the Saline and the Mock gave me some wicked cramps.  I also wasn’t aware of how quickly the saline was going to revisit me.  I peed right after and I thought that should have got rid of the majority of it, but as I was checking out I felt it all come down.  Luckily you could only see it if you were really looking.  And if you were really looking, you’d think I had peed my pants.  Lovely what we go through for babies!

Now I sit here and wait.  I’m going to skip my next period by just continuing onto the next BC pack.  Then after the nursing class, i’ll stop the BC and start the meds.  He said I may bleed a little, but that it would not be a real period and the meds would stop it from coming all the way.  Then after about a week and a half of meds, they will do the egg retrieval.  They said by the time I wake up from the anesthesia, they will know how many eggs were retrieved.  Exciting to know so soon!  By the next morning they will know how many fertilized and by day three they will know how many are looking good.  He said worst case senerio would be that only 2 or 3 are still fertilized and looking alright on day three, and that means they will just go ahead and implant those on day 3.  If we have a lot and they are progressing well, we will do a day 5 transfer.  Let’s hope for a day 5!

Oh, and check out all the free swag I got!  He said it wouldn’t be enough for the cycle, but hey, every little bit helps!  I am very appreciative!